SUMMARY The changes in family burden and participation in care of relatives to both voluntarily and compulsorily admitted patients were investigated as part of a longitudinal study of the quality of the mental health services in a Swedish county performed between 1986 and 1997. The relationship between the relative's mental health and family burden, participation in care and need of own support was also investigated. The results showed similar and high levels of burden and a non-sufficient participation in care in both periods investigated despite the ongoing changes in the delivery of psychiatric services and a change in the compulsory legislation in Sweden during the period. More relatives experienced an own need of care and support from the psychiatric services in the 1997 investigation. Relatives who experienced mental health problems of their own more often experienced other forms of burden, experienced less participation in the patient's treatment and also more often had own needs of care and support. It is concluded that interventions in families where relatives experience mental health problems will be useful, since a well-functioning network around the mentally ill person has shown to reduce relapse.

译文

总结在1986年和1997年进行的瑞典县精神卫生服务质量纵向研究中,对自愿和强制入院患者的家庭负担和亲属护理的变化进行了调查。还调查了亲属的精神卫生与家庭负担,参与护理和需要自己的支持之间的关系。结果显示,尽管在此期间,瑞典在提供精神病服务方面的持续变化以及强制性立法的变化,但在调查的两个时期中,负担水平相似且水平很高,并且对护理的参与不足。在1997调查中,更多的亲戚经历了精神科服务机构对自己的护理和支持的需求。经历过自己的精神卫生问题的亲戚更经常经历其他形式的负担,对患者治疗的参与较少,也更经常有自己的护理和支持需求。结论是,对亲属遇到精神卫生问题的家庭进行干预将是有用的,因为围绕精神病患者的良好运作的网络已显示出可以减少复发。

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