BACKGROUND:To analyse the psychometric properties of the structured Satisfaction Questionnaire with Gastrostomy Feeding (SAGA-8) in parents/caregivers of children with home enteral nutrition (HEN) by gastrostomy tube (GT). METHODS:Eighty-six caregivers (mothers) of paediatric patients with HEN by GT were recruited. Patients suffered from neurological disease (61.6%) and other chronic diseases. The SAGA-8 scale, a structured questionnaire to explore satisfaction with HEN by GT, and the Caregiver Burden Inventory (Zarit) were completed. The discriminating power of each of the SAGA-8 items, internal consistency and external validity were evaluated. An exploratory factor analysis and Kaiser-Meyer-Olkin (KMO) was performed as well. RESULTS:Eighty-four percent of the families expressed high satisfaction with GT feeding. All eight items of SAGA-8 gave additional information. The exploratory factor analysis revealed that a significant part of the items' variability could be explained by two independent factors: Factor 1 (direct benefit), which compiled the variables related to the perception of children's overall improvement by GT feeding; Factor 2 (indirect benefit), which grouped the variables related to a decrease in respiratory infections, feeding time and institutional support. Results from KMO (0.628) indicated the high adequacy of the items assessed in the factorial analysis. Moreover, the questionnaire presented high internal consistency (0.76), and the external validation analysis confirmed the correlation between SAGA-8 and Zarit, thereby emphasising the approptiate use of the SAGA-8 to detect carers' satisfaction. CONCLUSIONS:The SAGA-8 questionnaire has a high discriminatory power to assess the degree of satisfaction experienced by parents/caregivers of children with HEN by GT and, subsequently, the patients' wellbeing.

译文

背景:目的通过胃造口管(GT)分析胃肠道营养喂养(HEN)患儿父母/照顾者的胃造口喂养结构满意度调查表(SAGA-8)的心理计量学特征。
方法:招募了86例小儿HEN患者的GT照护者(母亲)。患者患有神经系统疾病(61.6%)和其他慢性疾病。已完成SAGA-8量表,用于探索GT对HEN满意程度的结构化问卷以及Caregiver Burden清单(Zarit)。评估了每个SAGA-8项目的辨别力,内部一致性和外部有效性。还进行了探索性因素分析和Kaiser-Meyer-Olkin(KMO)。
结果:84%的家庭对GT喂养表示高度满意。 SAGA-8的所有八项均提供了附加信息。探索性因素分析表明,项目差异的很大一部分可以由两个独立的因素解释:因子1(直接收益),该变量汇总了与GT喂养对儿童总体改善知觉有关的变量;因素2(间接收益),将与呼吸道感染减少,进食时间和机构支持有关的变量分组。 KMO(0.628)的结果表明,析因分析中所评估项目的充分性很高。此外,该问卷具有较高的内部一致性(0.76),并且外部验证分析证实了SAGA-8和Zarit之间的相关性,从而强调了合理使用SAGA-8来检测护理人员的满意度。
结论:SAGA-8问卷具有很高的判别力,可以评估GT患儿的父母/监护人对HEN的满意程度,并随后评估患者的幸福感。

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