The findings presented in an accompanying paper by Menzies, Parkin, and Hey regarding the survival rates and quality of life of babies with severe spina bifida (Lancet 1985 Nov 2; 2(8462): 993-995) prompt the Working Group to reevaluate the ethical guidelines supporting selective treatment proposed in their 1975 report, "Ethics of Selective Treatment of Spina Bifida" (Lancet 1975 Jan 11; 1(7898): 85-88). Although Menzies, et al., report that survival rates are higher than previously expected and that in most cases the children's and parents' lives appear not to be excessively burdensome, the Working Group contends that there "continues to be ethical justification for selective treatment" of such newborns. Since medical, psychological, and social considerations now seem to be "more complex and less clearcut," the Group emphasizes that judgments regarding treatment should be made on a case-by-case basis.

译文

:孟席斯(Menzies),帕金(Parkin)和黑伊(Hey)随附的论文中有关严重脊柱裂的婴儿的存活率和生活质量的研究结果(《柳叶刀》 1985年11月2日; 2(8462):993-995)促使工作组重新评估支持选择性治疗的道德准则在其1975年的报告“脊柱裂的选择性治疗伦理”中提出(柳叶刀1975年1月11日; 1(7898):85-88)。尽管孟席斯等人报告说,存活率比以前预期的要高,而且在大多数情况下,儿童和父母的生活似乎并不过分负担,但工作组认为,“继续有道德地为选择治疗提供理由”这样的新生儿。由于现在医学,心理和社会方面的考虑似乎“更加复杂且不那么明确”,专家组强调有关治疗的判断应视具体情况而定。

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