AIMS:To explore the experiences and expectations of patients with chronic fatigue syndrome and general practitioners to develop the potential role of an advanced nurse practitioner at the diagnostic care path of abnormal fatigue developed for regional transmural implementation in the Belgian provinces of East and West Flanders. BACKGROUND:Patients with chronic fatigue syndrome experience an incapacitating chronic fatigue that is present for at least 6 months. Since many uncertainties exist about the causes and progression of the disease, patients have to cope with disbelief and scepticism. Access to health care may be hampered, which could lead to inappropriate treatments and guidance. DESIGN:Qualitative design. METHODS:Individual semi-structured interviews were conducted with patients with chronic fatigue syndrome and general practitioners in Belgium. Data were collected over 9 months in 2014-2015. All interviews were audio recorded and transcribed for qualitative analysis using open explorative thematic coding. RESULTS:Fifteen patients and 15 general practitioners were interviewed. Three themes were identified: mixed feelings with the diagnosis, lack of one central intermediator and insufficient coordination. Participants stressed the need for education, knowledge and an intermediator to provide relevant information at the right time and to build up a trust relationship. CONCLUSION:This qualitative exploration underscores some clear deficiencies in the guidance of patients suffering from chronic fatigue syndrome and abnormal fatigue. An advanced nurse practitioner as a central intermediator in the transmural care of these patients could promote interdisciplinary/multidisciplinary collaboration and effective communication, provide education and ensure a structured and coordinated approach.

译文

目的:探讨慢性疲劳综合症患者和全科医生的经验和期望,以开发高级护士从业人员在比利时东部和西部法兰德斯省为实现跨壁实施而开发的异常疲劳的诊断护理路径中的潜在作用。
背景:患有慢性疲劳综合症的患者经历了至少6个月的丧失工作能力的慢性疲劳。由于存在关于该疾病的原因和进展的许多不确定性,因此患者必须应对怀疑和怀疑的态度。可能无法获得医疗保健,这可能导致不适当的治疗和指导。
设计:定性设计。
方法:对比利时的慢性疲劳综合症患者和全科医生进行了单独的半结构式访谈。在2014-2015年的9个月内收集了数据。所有访谈都被录音,并使用开放式探索性主题编码进行转录,以进行定性分析。
结果:对15例患者和15名全科医生进行了访谈。确定了三个主题:感觉与诊断混杂,缺乏一位中央中介和协调不足。与会者强调需要教育,知识和中介者,以在适当的时候提供相关信息并建立信任关系。
结论:这种定性探索强调了在指导慢性疲劳综合征和异常疲劳患者的指导上存在明显的缺陷。在这些患者的透壁护理中,作为高级中介人员的高级护理从业人员可以促进跨学科/多学科的合作和有效的沟通,提供教育并确保结构化和协调的方法。

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