PURPOSE:To understand differences in perceptions of patient-reported outcome domains between children with asthma and children from the general population. We used this information in the development of patient-reported outcome items for the Patient-Reported Outcomes Measurement Information System Pediatrics project. METHODS:We conducted focus groups composed of ethnically, racially, and geographically diverse youth (8-12, 13-17 years) from the general population and youth with asthma. We performed content analysis to identify important themes. RESULTS:We identified five unique and different challenges that may confront youth with asthma as compared to general population youth: (1) They experience more difficulties when participating in physical activities; (2) They may experience anxiety about having an asthma attack at anytime and anywhere; (3) They may experience sleep disturbances and fatigue secondary to their asthma symptoms; (4) Their health condition has a greater effect on their emotional well-being and interpersonal relationships; and (5) Youth with asthma report that asthma often leaves them with insufficient energy to complete their school activities, especially physical activities. CONCLUSIONS:The results confirm unique experiences for children with asthma across a broad range of health domains and enhance the breadth of all domains when creating an item bank.

译文

目的:了解哮喘儿童和普通人群儿童对患者报告的结局认识的差异。我们在为患者报告的结果测量信息系统儿科项目开发患者报告的结果项目时使用了此信息。
方法:我们进行了焦点小组讨论,这些小组由种族,种族和地理上不同的青年(8-12岁,13-17岁)组成,这些青年来自普通人群和哮喘青年。我们进行了内容分析,以识别重要的主题。
结果:与普通人群的青年相比,我们确定了青年哮喘可能面临的五个独特且不同的挑战:(1)他们在参加体育活动时遇到更多的困难; (2)他们可能随时随地都对哮喘发作感到焦虑; (3)他们可能会因哮喘症状而继发睡眠障碍和疲劳; (4)他们的健康状况对他​​们的情绪健康和人际关系有更大的影响; (5)患有哮喘的青年报告说,哮喘常常使他们精力不足,无法完成其学校活动,尤其是体育活动。
结论:这些结果证实了哮喘儿童在广泛的健康领域中的独特经历,并在创建项目库时提高了所有领域的广度。

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