An estimated 6,500 undocumented immigrants in the United States have been diagnosed with end-stage renal disease (ESRD). These individuals are ineligible for the federal insurance program that covers dialysis and/or transplantation for citizens, and consequently are subject to local or state policies regarding the provision of healthcare. In 76% of states, undocumented immigrants are ineligible to receive scheduled outpatient dialysis treatments, and typically receive dialysis only when presenting to the emergency center with severe life-threatening symptoms. 'Emergency-only hemodialysis' (EOHD) is associated with higher healthcare costs, higher mortality, and longer hospitalizations. In this paper, we present an ethical critique of existing federal policy. We argue that EOHD represents a failure of fiduciary and professional obligations, contributes to moral distress, and undermines physician obligations to be good stewards of medical resources. We then explore potential avenues for reform based upon policies introduced at the state level. We argue that, while reform at the federal level would ultimately be a more sustainable long-term solution, state-based policy reforms can help mitigate the ethical shortcomings of EOHD.

译文

在美国,估计有6,500名无证移民被诊断出患有终末期肾病 (ESRD)。这些人没有资格参加涵盖公民透析和/或移植的联邦保险计划,因此要遵守有关提供医疗保健的地方或州政策。在76% 州,无证移民没有资格接受预定的门诊透析治疗,并且通常仅在出现严重威胁生命的症状时才接受透析。“仅急诊血液透析” (EOHD) 与更高的医疗费用,更高的死亡率和更长的住院时间相关。在本文中,我们提出了对现有联邦政策的道德批评。我们认为,EOHD代表了信托和专业义务的失败,加剧了道德困扰,并破坏了医生成为医疗资源良好管理者的义务。然后,我们根据州一级出台的政策,探索潜在的改革途径。我们认为,尽管联邦一级的改革最终将是一种更可持续的长期解决方案,但基于州的政策改革可以帮助减轻EOHD的道德缺陷。

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