Since April 1997, in Melbourne, Australia, speech pathologists have collaborated to establish a prospective database of functional outcomes of speech, swallowing and voice for patients undergoing head and neck cancer treatments. Staff at eight acute care hospitals, all of which offer speech pathology for head and neck cancer services in Victoria, are contributing data, collated centrally, in an agreed pro forma. Early results are given (after 12 months' data collection). The implications for clinically-based research, and the future potential for benchmarking outcomes--by expansion of the rehabilitation database beyond the current participating sites--is discussed. This paper outlines the rationale of establishing the database is multicentered, and explores some of the complexities involved, including the challenges inherent in long-term accurate data collection in the head and neck cancer patient population. This work represents the development of an appropriate, usable tool for data collection on functional outcomes.

译文

自1997年4月以来,在澳大利亚墨尔本,言语病理学家合作建立了一个前瞻性数据库,用于接受头颈癌治疗的患者的言语,吞咽和语音功能结果。八家急诊医院的工作人员正在以商定的形式提供数据,这些医院都为维多利亚州的头颈癌服务提供言语病理学。给出了早期结果 (在12个月的数据收集后)。讨论了基于临床研究的含义以及通过将康复数据库扩展到当前参与站点之外的基准结果的未来潜力。本文概述了建立多中心数据库的基本原理,并探讨了其中的一些复杂性,包括头颈癌患者人群长期准确数据收集所固有的挑战。这项工作代表了开发一种适当的,可用的工具来收集功能结果的数据。

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