BACKGROUND:Parents reported experiences of support for diabetes management in schools are variable. Recent data from European countries are sparse and experiences in the Irish primary school setting have not been described previously. AIM:To describe parents' experiences of support for diabetes management in primary schools in Ireland. METHODS:Questionnaires were distributed through nine regional and tertiary paediatric diabetes services to parents of children aged 4-13 years with type 1 diabetes attending primary school. Data sought included patient demographics, treatment regimens, diabetes education of school staff, assistances received, and interactions between the school and family. RESULTS:Responses were received from 418 parents of primary school children with type 1 diabetes. Twenty-six percent of children were not on intensive insulin therapy. Children on a multiple daily injection regime who were unable to self-administer insulin had administration facilitated by attendance of a parent in 95% of cases. Seventy-eight percent of parents were phoned by the school regarding diabetes management, particularly those of younger children (p < 0.001). More than half of parents attended the school at least once per month to assist with diabetes management, particularly those of younger children (p < 0.001). Younger children were also more likely to have a special needs assistant (p < 0.001) and have a written management plan (p = 0.001). CONCLUSIONS:Our research has demonstrated deficits in care with respect to access to intensive insulin therapy, individualised care plans and a high burden on families which should be addressed through the National Clinical Programme for Paediatrics and Neonatology and relevant government departments.

译文

背景:家长报告的在学校中支持糖尿病管理的经验是多种多样的。来自欧洲国家的最新数据很少,并且以前没有描述过爱尔兰小学环境中的经历。
目的:描述父母在爱尔兰小学支持糖尿病管理的经历。
方法:通过9种地区和三级小儿糖尿病服务,向小学阶段4-13岁1型糖尿病儿童的父母分发了问卷。收集的数据包括患者人口统计资料,治疗方案,对学校员工的糖尿病教育,所获得的帮助以及学校与家庭之间的互动。
结果:418名1型糖尿病小学生父母收到了答复。 26%的儿童未接受强化胰岛素治疗。在每天多次注射方案中无法自行给予胰岛素的儿童,在95%的情况下,由父母陪同有助于进行给药。学校通过电话联系了78%的父母关于糖尿病管理,特别是年幼儿童的糖尿病管理(p <0.001)。一半以上的父母每月至少上一次学校,以协助糖尿病管理,尤其是年幼的儿童(p <0.001)。年龄较小的孩子也更有可能有特殊需要助手(p <0.001)并有书面的管理计划(p = 0.001)。
结论:我们的研究表明,在获得强化胰岛素治疗的护理方面存在缺陷,个性化护理计划以及家庭负担沉重,应通过《国家儿科和新生儿科临床计划》和相关政府部门解决。

+1
+2
100研值 100研值 ¥99课程
检索文献一次
下载文献一次

去下载>

成功解锁2个技能,为你点赞

《SCI写作十大必备语法》
解决你的SCI语法难题!

技能熟练度+1

视频课《玩转文献检索》
让你成为检索达人!

恭喜完成新手挑战

手机微信扫一扫,添加好友领取

免费领《Endnote文献管理工具+教程》

微信扫码, 免费领取

手机登录

获取验证码
登录