The findings presented in an accompanying paper by Menzies, Parkin, and Hey regarding the survival rates and quality of life of babies with severe spina bifida (Lancet 1985 Nov 2; 2(8462): 993-995) prompt the Working Group to reevaluate the ethical guidelines supporting selective treatment proposed in their 1975 report, "Ethics of Selective Treatment of Spina Bifida" (Lancet 1975 Jan 11; 1(7898): 85-88). Although Menzies, et al., report that survival rates are higher than previously expected and that in most cases the children's and parents' lives appear not to be excessively burdensome, the Working Group contends that there "continues to be ethical justification for selective treatment" of such newborns. Since medical, psychological, and social considerations now seem to be "more complex and less clearcut," the Group emphasizes that judgments regarding treatment should be made on a case-by-case basis.

译文

Menzies,Parkin和Hey在随附的论文中提出的有关严重脊柱裂婴儿的存活率和生活质量的发现 (《柳叶刀》1985 11月2日; 2(8462): 993-995) 促使工作组重新评估其1975报告 “脊柱裂选择性治疗的伦理学” 中提出的支持选择性治疗的伦理准则 (柳叶刀1975 1月11日; 1(7898): 85-88)。尽管Menzies等人报告说,生存率高于以前的预期,并且在大多数情况下,儿童和父母的生活似乎没有过分繁重,但工作组认为,“继续有道德理由对这种新生儿进行选择性治疗”。由于医学,心理和社会考虑现在似乎 “更加复杂且不那么明确”,因此该小组强调应根据具体情况做出有关治疗的判断。

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