INTRODUCTION:Databases are useful tools in clinical settings. The authors review the benefits and challenges associated with the development and implementation of an efficient electronic database for the multidisciplinary Vascular Birthmark Clinic at the Alberta Children's Hospital, Calgary, Alberta. METHODS:The content and structure of the database were designed using the technical expertise of a data analyst from the Calgary Health Region. Relevant clinical and demographic data fields were included with the goal of documenting ongoing care of individual patients, and facilitating future epidemiological studies of this patient population. After completion of this database, 10 challenges encountered during development were retrospectively identified. Practical solutions for these challenges are presented. RESULTS:THE CHALLENGES IDENTIFIED DURING THE DATABASE DEVELOPMENT PROCESS INCLUDED: identification of relevant data fields; balancing simplicity and user-friendliness with complexity and comprehensive data storage; database expertise versus clinical expertise; software platform selection; linkage of data from the previous spreadsheet to a new data management system; ethics approval for the development of the database and its utilization for research studies; ensuring privacy and limited access to the database; integration of digital photographs into the database; adoption of the database by support staff in the clinic; and maintaining up-to-date entries in the database. CONCLUSIONS:There are several challenges involved in the development of a useful and efficient clinical database. Awareness of these potential obstacles, in advance, may simplify the development of clinical databases by others in various surgical settings.

译文

简介:数据库是临床环境中的有用工具。作者回顾了为阿尔伯塔省卡尔加里市阿尔伯塔儿童医院的多学科血管性胎记诊所开发和实施高效的电子数据库所带来的收益和挑战。
方法:数据库的内容和结构是使用来自卡尔加里卫生区的数据分析师的技术专长设计的。包括相关的临床和人口统计学数据字段,目的是记录对单个患者的持续护理,并促进对该患者人群的未来流行病学研究。该数据库完成后,回顾性地确定了开发过程中遇到的10个挑战。提出了应对这些挑战的实用解决方案。
结果:在数据库开发过程中发现的挑战包括:识别相关数据字段;在简单性和用户友好性与复杂性和全面的数据存储之间取得平衡;数据库专业知识与临床专业知识;软件平台选择;将以前的电子表格中的数据链接到新的数据管理系统;数据库开发及其研究研究的伦理批准;确保隐私和对数据库的有限访问;将数字照片集成到数据库中;诊所支持人员采用数据库;并维护数据库中的最新条目。
结论:开发有用和高效的临床数据库涉及多个挑战。预先意识到这些潜在障碍可能会简化其他人在各种手术环境中临床数据库的开发。

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