This is a qualitative examination of candidates' decision-making in relation to the genetic test for Huntington's disease. Semi-structured interviews were conducted with nine participants who were asked about factors influencing their decision whether to take up predictive genetic testing. Transcripts of interviews were subjected to interpretative phenomenological analysis to elicit emergent themes. A key factor for participants was to do the right thing for their children. Interestingly, this factor presents a moral dilemma to participants and can direct them either towards or away from testing. This article offers a detailed examination of how participants think through this dilemma.

译文

这是对候选人与亨廷顿氏病基因测试有关的决策的定性检查。对9名参与者进行了半结构化访谈,询问了影响其决定是否进行预测性基因检测的因素。访谈的笔录经过解释性现象学分析,以引出新出现的主题。参与者的一个关键因素是为他们的孩子做正确的事情。有趣的是,这个因素给参与者带来了道德困境,可以引导他们走向或远离测试。本文详细介绍了参与者如何思考这一难题。

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