This paper discusses a case vignette that captures an ethically challenging situation in qualitative research. The study was about families who had experienced a life-saving bone marrow transplantation between siblings, who were children at the time of transplantation. A difficult situation emerged during a joint family interview that took place a few years after the transplantation. Parents, donor and the recipient were present, both still children. The difficulties included a confrontation of the 10-year old donor child with accusations and pejorative statements from the other family members and his sidelining from the conversation. The interviewers have been acutely aware that their presence in this situation in this moment was an intrusion into family dynamics. The paper argues, on the basis of the vignette, that professional norms of qualitative research need to be reconsidered. Specifically, it is argued that interviewers are obligated to take an engaged moral stance, by taking a position in an exchange of moral arguments.

译文

本文讨论了一个案例插图,该插图捕捉了定性研究中道德上具有挑战性的情况。该研究是关于在兄弟姐妹之间经历过挽救生命的骨髓移植的家庭,这些兄弟姐妹在移植时是孩子。移植后几年,在一次家庭联合采访中出现了困难的情况。父母、捐赠者和接受者都在场,都是孩子。困难包括与其他家庭成员的指控和贬义陈述对10岁的捐助者儿童的对抗,以及他在谈话中的旁白。面试官敏锐地意识到,他们在这种情况下的出现是对家庭动态的入侵。本文认为,在插图的基础上,需要重新考虑定性研究的专业规范。具体来说,有人认为,采访者有义务通过交换道德论点来采取积极的道德立场。

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