Women with epilepsy who were service users of Epilepsy Action in the United Kingdom (UK) completed a questionnaire on the risks of caring for their baby and whether they were provided with useful information on fulfilling their caring role (Epilepsy Action is the trading name of the British Epilepsy Association a major UK charity for those with epilepsy). The cohort of 84 all reported some problems. The following were rated as being the most problematic; caring for their baby outside the home and bathing, whereas breastfeeding was rated as much less problematic. Some problems were rated as severe, which meant some babies were put at undue risk. Approximately 50% had been provided with information about caring and managing risk. Eighty-six percent found this information useful. The main conclusion is that more extensive, well-planned research is needed on this topic. There is virtually nothing in the academic literature to guide practice and this is needed. Present guidelines tend only to cover what the women rate as less problematic, e.g. breastfeeding, whereas what they rate highly problematic is often not covered. This needs attention in updates.

译文

英国癫痫行动的服务使用者:患有癫痫的妇女填写了一份调查表,内容涉及照看婴儿的风险以及是否为他们提供了履行照护职责的有用信息(癫痫行动是英国癫痫病协会是针对癫痫患者的英国主要慈善机构)。 84人的队列均报告了一些问题。以下问题被认为是最有问题的;在家外照顾婴儿和洗澡,而母乳喂养的问题被认为要少得多。有些问题被认为是严重的,这意味着一些婴儿处于不必要的风险中。已向大约50%的人提供了关怀和管理风险的信息。 86%的人认为此信息有用。主要结论是,需要对该主题进行更广泛,计划周密的研究。学术文献中几乎没有任何东西可以指导实践,这是必需的。目前的准则只倾向于涵盖妇女认为没有那么大问题的问题,例如母乳喂养,而他们认为非常棘手的问题通常无法解决。这需要在更新中注意。

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