INTRODUCTION:The goal of burn care is that 'the quality of the outcome must be worth the pain of survival'. More research is needed to understand how best to deliver care for patients with burns to achieve this aim. Loss of independence, function as well as loss of income for patients with burns and carers cause a significant burden at both individual and societal levels. Much is being done to advance knowledge in the clinical care field; however, there has been a paucity of research exploring psychosocial outcomes. This paper describes the study background and methods, as implemented in an Australian cohort study of psychosocial outcomes after major burn injuries. METHODS AND ANALYSIS:In this inception cohort study, a target sample of 230 participants, aged 18 years or over, admitted to a single statewide burns centre with a burn injury are identified by hospital staff for inclusion. Baseline survey data are collected either in person or by telephone within 28 days of the injury and participants then followed up with telephone interviews at 3, 6 and 12 months postburn. Injury and burns treatment information is collected from medical records. Social support is measured as a predictor variable using the Multidimensional Scale of Perceived Social Support. Outcome data are collected via standardised measures in the domains of Quality of Life (SF-12, EQ-5D, BSHS-B), depression (PHQ-9), post-traumatic stress disorder (PCL-C, PAS), community integration (CIQ-R) and Quality-Adjusted Life Years (EQ-5D). Additional survey questions measure life satisfaction, return to work and public services utilisation at 12 months postinjury. Data analysis methods will include analysis of variance, Pearson correlation and hierarchical multiple regression analyses. ETHICS AND DISSEMINATION:Hospital-based and University of Queensland Human Research Ethics Committees have approved the protocol. Results from the study will be disseminated at national and international conferences, in peer-reviewed journals and in a doctoral thesis. TRIAL REGISTRATION NUMBER:Australia New Zealand Clinical Trials Registry (ACTRN12616000828426). Retrospectively registered on 23 June 2016; pre-results.

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简介:烧伤护理的目标是“结果的质量必须值得生存之苦”。需要更多的研究来了解如何最好地为烧伤患者提供护理以实现该目标。烧伤和照顾者患者失去独立性,功能以及收入损失,在个人和社会层面都造成了沉重的负担。为了提高临床护理领域的知识水平,正在做很多工作。然而,很少有研究探讨社会心理结果。本文描述了一项研究背景和方法,该方法在澳大利亚严重烧伤后心理社会结局队列研究中实施。
方法和分析:在这项队列研究中,由医院工作人员确定了230名年龄在18岁或以上,被纳入一个州范围内烧伤中心的烧伤中心的参与者的目标样本。基线调查数据在受伤后28天内亲自或通过电话收集,参与者在烧伤后3、6和12个月进行电话访谈。受伤和烧伤的治疗信息是从医疗记录中收集的。社会支持是使用感知的社会支持多维量表作为预测变量来衡量的。通过生活质量(SF-12,EQ-5D,BSHS-B),抑郁症(PHQ-9),创伤后应激障碍(PCL-C,PAS),社区整合等领域的标准化措施收集结果数据(CIQ-R)和质量调整寿命年(EQ-5D)。额外的调查问题可衡量受伤后12个月的生活满意度,重返工作岗位和使用公共服务的情况。数据分析方法将包括方差分析,Pearson相关性和分层多元回归分析。
道德与传播:医院和昆士兰大学人类研究伦理委员会已批准该协议。该研究的结果将在国家和国际会议,同行评审期刊和博士学位论文中进行传播。
试验注册号:澳大利亚新西兰临床试验注册(ACTRN12616000828426)。追溯注册于2016年6月23日;结果。

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