"Respect for Persons" is an ethical principle demonstrated through the informed consent process. Participants at a large HIV research center were surveyed to identify important aspects of the consent process. Persons with and without HIV (n = 103) completed a short pre/post questionnaire with both open-ended and forced choice response options. Qualitative analysis resulted in eleven themes about the most important consent elements which did not differ by HIV serostatus. Overall, participants rated the informed consent content and presentation by research staff as "extremely informative" and found the consent information to be "extremely consistent" with their study experience. Study results support the value of an interactive process and can be used to inform the design of a standardized, digital consent process.

译文

:“尊重人”是通过知情同意程序证明的道德原则。对大型HIV研究中心的参与者进行了调查,以确定同意过程的重要方面。患有和没有艾滋病毒的人(n = 103)完成了简短的前/后问卷调查,包括开放式和强迫选择反应选项。定性分析得出了关于最重要的同意元素的11个主题,这些主题在HIV血清状况方面没有差异。总体而言,参与者将知情同意书的内容和研究人员的陈述评为“极其有益”,并发现同意信息与他们的学习经历“极为一致”。研究结果支持交互过程的价值,并可用于为标准化数字同意过程的设计提供信息。

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